This month we are looking at how ESNG can help your special needs child overcome challenges – social, emotional, or physical – and live, learn, and play fully and freely. One of the many ways we do this is through the Champions for Children program. The program works with families whose children do not qualify for the Katie Beckett Waiver. Their children’s medical needs require so much attention that it’s difficult for them financially. One such child is Eliavah.
Eliavah is a sweet five-year-old girl who has been in therapies since she was six months old. She was diagnosed at birth with tetralogy of fallot, and underwent open heart surgery at four months old to repair her defects.
Later, after not meeting typical milestones, she was diagnosed with low muscle tone. A team of specialists has followed Eliavah her whole life to try to determine a cause behind her conditions. Although an exact cause has not been discovered, she struggles daily to overcome developmental delays and sensory processing disorder.
In the last two years, she has struggled with sleep issues and possible allergies that affect her daily living. Her family is in the process of trying to detect the cause of these, and how to best help her.
It is because of Champions for Children that Eliavah has been able to continue her needed therapies, and get help with extraneous medical expenses that would be a burden on the family otherwise. She continues to show progress and even spends half of her day in kindergarten in general education class!
She is very proud of her abilities that she has gained through hard work and therapy. She can now read and her writing is improving daily. Her independent skills are also improving in areas such as self dressing and grooming.
She is truly becoming a more confident young lady. Her mother says, “We are forever grateful for the blessing in our lives through Champions for Children. The staff has not only been loving and encouraging, but prompt and professional in helping our family and this makes a huge difference in the lives of parents that have children with needs!!!”